Covid-19 Long Haulers
COVID-19 survivors recount their ongoing, unexplainable symptoms that won’t go away
Read Stories of COVID-19 Long Haulers
She caught Covid early on, spent months recovering, and is now working to rebuild her life.
This COVID-19 survivor couldn’t work, but couldn’t get a doctor’s note to take time off to recuperate because of a false negative.
This athlete has been benched for 15 months because of Covid-19 related symptoms including dysautonomia.
“Eight days later I woke up, in a different hospital, from a ventilator. I was surrounded by Drs and Nursing staff, clapping and crying, ‘You’re alive! Praise God!’”
After experiencing COVID-19 for herself, Gail decided to do something more to get the facts out there.
“Every time I got out of the shower, more clumps kept falling out of my hair. I thought I was going bald.”
“I’ve had the flu twice as an adult and this is not like the flu at all. When you get the flu, you get the symptoms, but then you’re back to normal right away. That didn’t happen to me. I’m still dealing with lingering symptoms.”
My whole life I was told I had a mental health disorder and my problems were all in my head. When I found out that it was Narcolepsy and Cataplexy and it could be fixed, it changed my life. I had five good years like that. Then, COVID-19 happened and my whole world changed again.
“There’s a myth that once you no longer test positive from COVID, you’ve “recovered.” Like getting over the flu. That could not be further from the truth. Imagine having the flu but you never recover – like a university in hell. You just never graduate!”
After 17 weeks of unexplainable, ongoing symptoms, Monica was diagnosed with COVID-induced lupus and is still fighting for workmen's compensation despite catching COVID at work.
“Ambulances and firetrucks arrived that night around 09:30PM. I sat downstairs in the pouring rain. The medics stood far away shouting, ‘Mam stay there. We’ll come to you!’ It felt like I had the plague or something. I watched them suit up. Then, I crawled my way up the steps into the ambulance. That evening I tested positive for COVID-19.”
“My body could not have survived this in the state it is in without the hand of God intervening.”
An emergency room nurse trained to respond to bioterrorism attacks and Ebola, Susan was ready for anybody else to get COVID-19, except herself. Now, after testing positive again four months after her first positive, Susan's still struggling with the aftermath.
“As someone who’s always been incredibly active, high energy, and healthy, I would have laughed if someone told me I’d be battling 4 months of persistent, debilitating symptoms from an invisible foe.”
“I was diagnosed May 16, 2016 with Multiple sclerosis (MS). I've had it since 2006 undiagnosed. I managed it up until recently with COVID.”
“My body doesn’t respond to bacteria and viruses in the way a healthy person’s immune system responds. You’re supposed to fight it. I kind of invite it over for lunch and help it hurt me.”
I spent four months bed-bound. I had a temperature part of every day for five months. Finally, I was prescribed a steroid inhaler which helped the horrible, suffocating chest tightness. But until recently, everything that I found to help, I had to find myself with the amazing help of covid support groups online.